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Updates on Havalah

By: Kristen
Date/Time: 9/19/2007 9:12:19 AM
Update:
Hello! I haven't updated in awhile because I wanted to do the second half of our trip report before adding anything new - and that takes awhile to write.

So now we actually have some medical stuff going on. we brought Havalah for labs this past Monday morning and her LFT's (liver function tests) were elevated significantly. So they brought us in yesterday for more a biopsy. Havalah was so excited to come to the hospital and stay overnight. She had a whole agenda of things she wanted to do from staying up late and having a pillow fight to ordering room service and doing arts and crafts and getting a giant balloon. We've been doing our best to live up to her expectations and she was a trooper about going for labs and an ultrasound but she got pretty distraught when we brought her to the special procedures room and had to go in without me and the when se woke up ith leads on and a IV in her hand she was pretty angry.

Once she was able to sit up ad eat some dinner she felt better though. She ate a cup of chocolate ice cream, a plate full of fries, two huge chicken fingers, a breadstick and half a cupcake ... ad she drank several juices. I was a litle worried she would throw up from the sheer volume in such s short time. She also got to paint a little cardboard butterfly box. kristen the child life person on our floor brought us about 8 different projects to do.

So everything was going pretty good and she wet to bed at a reasonable time - and then promptly spiked a fever. It went up to almost 103 but went down with tylenol and didn't come back. While she was running a fever her heart rate was in the 170's and she was breathing very shallow almost panting. She was alert though and said she felt fine. They drew blood cultures though to make sure it wasn't a bacterial infection from her biopsy.

So it's about 8 now .. we woke up aroud 7 when they ame in to poke her for some more bloodwork. Havala is in good spirits this morning, she's watching an Eloise video and eating eggs and bacon. We should find out some biopsy results late this morning hopefully. Whether or nnot we'll be able to go home depends on those results and her labs but the fact that she ran a fever complicates things as well.

 
By: Kristen
Date/Time: 9/20/2007 12:38:14 PM
Update:
Thursday update - We're going home! We're allready half packed and Havalah is having some lunch while they finish up our paperwork. Havalah's labs have looked a little better each day since Monday but they're still in the hundreds. I think her ALT was 271 today and normal is around 30. She hasn't ran a fever since yesterday afternoon and so far nothing has grown on her blood cultures. Her biopsy doesn't show rejection but it doesn't look normal either. They are doing further slides to look for specific infections and they did a nose swab today - which means we are in isolation but since we're leaving it's no big deal. so for now we are going home- and we'll follow up with labs and a clinic appointment on Monday. Havalah had a pretty good time in the hospital and would be happy to stay longer.
 
By: Kristen
Date/Time: 9/21/2007 4:14:57 PM
Update:
Hello! We are at home and Havalah went back to school today. She has labs and an appointment for follow up on Monday.

In other unrelated news I found a new kids clothing company that I am in love with. It's called Matilda Jane and it's a small family compnay and they make all of their clothes here in the US. You can only buy it by contacting the company directly or they have trunk show parties in private homes. They don't have a trunk keeper/respresentative in our area - and I am hoping to become one. So the first step was to have a party - but since they don't have anyone in my area i am having a "online trunk show" So check out the catalog : http://matildajane.typepad.com/photos/matilda_jane_fall_catalog/index.html and if you see something you want email Sarah at mjctrunks1@yahoo.com and tell her you are with the Kristen Wotruba-Kolb trunk show. If you're interested in hosting a trunk show in the future - let her know that too!

 
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  Main Fundraising EVENTS / Info / Updates Pictures Havalah Updates Biliary Atresia / Liver Transplant Info Become an Organ Donor Links Guest book  
"DONATE LIFE" GREEN REMINDER WRISTBANDS FOR SALE - $2 EACH CLICK HERE